Developmental Disabilities

Autism spectrum disorders; metabolic and degenerative disorders, More

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Academy for Educational Development
AED is an independent, nonprofit organization committed to solving critical social problems in the U.S. and throughout the world through education, social marketing, research, training, policy analysis and innovative program design and management. Major areas of focus include health, education, youth development, and the environment. Add To Favorites

Acumen Fiscal Intermediary
Helps hundreds of individuals, guardians, and caregivers take charge of the supports they and/or their dependents receive. Add To Favorites

Administration on Developmental Disabilities
Ensures that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent services, supports, and other assistance and opportunities that promotes independence, productivity, and integration and inclusion into the community. The ADD lives under the Administration for Children & Families, which is part of the U.S. Department of Health and Human Services. Add To Favorites

Aims to offer disabled individuals day to day living that is as rich, absorbing and worthwhile as possible, with an emphasis on helping clients live up to their maximum potential in the community. Add To Favorites

American Association of People with Disabilities
A cross-disability member organization dedicated to ensuring economic self-sufficiency and political empowerment for Americans with disabilities. AAPD works in coalition with other disability organizations for the full implementation and enforcement of disability nondiscrimination laws. Add To Favorites

American Association on Intellectual and Developmental Disabilities (AAIDD)
Promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities. Add To Favorites

American Speech-Language-Hearing Association
The professional, scientific, and credentialing association for more than 114,000 members and affiliates who are audiologists, speech-language pathologists, and speech, language, and hearing scientists. Its mission is to ensure that all people with speech, language, and hearing disorders have access to quality services to help them communicate more effectively. Add To Favorites

A membership organization formed in 1988 as the Association for Persons in Supported Employment to improve and expand integrated employment opportunities, services, and outcomes for persons experiencing disabilities. Add To Favorites

ARCH National Respite Network and Resource Center
Supports respite service providers and families through training, technical assistance, evaluation, and research. Add To Favorites

Association for Persons with Severe Handicaps (TASH)
An international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm. TASH supports the inclusion and full participation of children and adults with disabilities in all aspects of their communities as determined by personalized visions of quality of life. Add To Favorites

Association for Science in Autism Treatment (ASAT)
ASAT supports all scientifically sound research on the prevention, treatments and cure for autism. Add To Favorites

Association of Higher Education And Disability (AHEAD)
AHEAD is the premiere professional association committed to full participation of persons with disabilities in postsecondary education. Add To Favorites

Association of University Centers on Disabilities
A network of interdisciplinary Centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities. Add To Favorites

Attention Deficit Disorder Association (ADDA)
Provides information, resources and networking to adults with Attention Deficit/Hyperactivity Disorder and to the professionals working with them. Add To Favorites

Attention Deficit Disorder Resources
A national nonprofit organization that helps people with ADD or ADHD achieve their full potential through education, support and networking opportunities. Add To Favorites

Autism Research at the National Institute of Child Health & Human Development (NICHD)
Provides easy access to the most current information about NICHD research projects, publications, news releases, and other activities related to autism and similar disorders. Add To Favorites

Autism Society of America
Provides information and referral for families dealing with autism. Connects 20,000 members through a working network of over 200 chapters in nearly every state. Add To Favorites

Autism Source
The Autism Source Resource Database, created in 2004, is the most comprehensive database of its kind. Use it to search nationwide autism-related services and supports by location or service type. Add To Favorites

Autism Speaks
Seeks to change the future for all who struggle with autism spectrum disorders, and is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals. Add To Favorites

Beach Center on Disability
Works to make a significant and sustainable difference in the quality of life of families and individuals affected by disability and of those who are closely involved with them. Add To Favorites

Best Buddies
A nonprofit 501(c)(3) organization dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment. Add To Favorites

Center for an Accessible Society
Works to focus public attention on disability and independent living issues. Add To Favorites

Center on Human Policy (CHP)
CHP is a Syracuse University based policy, research, and advocacy organization involved in the national movement to insure the rights of people with disabilities. Add To Favorites

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
Provides general (non-clinical) information on AD/HD in children, teens, and adults. Also provides information for those who may qualify for special education and related services under the Individuals with Disabilities Education Act or Section 504 of the Rehabilitation Act solely on the basis of their AD/HD when it impairs educational performance or learning. Add To Favorites

Children’s Hospital Boston Intellectual And Developmental Disabilities Research Center
The mission is to focus research on issues of relevance and importance to intellectual and developmental disabilities. Add To Favorites

Civitan International Research Center (CIRC), University of Alabama at Birmingham
CIRC is an interdisciplinary center dedicated to improving lives through brain research and the prevention and treatment of developmental disabilities. Add To Favorites

Council for Exceptional Children
The CEC is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities and the gifted. Add To Favorites

Council on Quality and Leadership
The Council is an international organization at the forefront of the movement to create opportunities for people with disabilities, by directing efforts toward promoting quality improvement in services and supports. Add To Favorites

Developmental Disabilities Resource Center
Provides leading-edge services that create opportunities for people with developmental disabilities and their families to participate fully in the community. Family Services includes early intervention, family support and children's Medicaid waivers. Add To Favorites

Disability Access Information and Support
An important resource to the higher education community, providing a menu or services for those concerned with disability and access to higher education. Add To Favorites

Disability is Natural
Encourages new ways of thinking about disability to help create a society in which all people are valued and included. Add To Favorites

Disability Resources
Government resources, services and information for people with disabilities. Add To Favorites

Disability Rights Education and Defense Fund, Inc.
DREDF is a national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and education and training of attorneys, advocates, persons with disabilities, and parents of children with disabilities. Add To Favorites
A resource dedicated to accessible travel information that provides information on businesses from around the world that specialize in disability travel. Add To Favorites

Easter Seals Disability Services
Non-profit, community-based health agency dedicated to helping children and adults with disabilities attain greater independence. Add To Favorites

Elwyn is a non-profit human services organization for people with special challenges. It serves children and adults with developmental, physical and emotional disabilities, as well as those with disadvantages. Add To Favorites

Eunice Kennedy Shriver Center, UMass Medical School
Promotes understanding of neurological and behavioral development, with special emphasis on intellectual and developmental disabilities. Add To Favorites

Family Voices
A national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals. Add To Favorites

Faye J. Lindner Center for Autism
Helps families obtain comprehensive assessments, support, and information on the latest research. Also provides school consultation services and is available to assist schools in program development for students with autism. Add To Favorites

Federal Resource Center for Special Education (FRC)
The FRC is a coordinating center for special education technical assistance providers. Add To Favorites

Federation for Children with Special Needs
Provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities. Add To Favorites

Gift from Within
A nonprofit organization dedicated to those who suffer post-traumatic stress disorder (PTSD), those at risk for PTSD, and those who care for traumatized individuals. Add To Favorites

Gimp on the Go
An online travel site addressed to the needs of the disabled traveler. Add To Favorites

Global and Regional Asperger Syndrome Partnership
A group committed to raising awareness about this condition, while including those diagnosed with autism, Asperger syndrome and pervasive developmental disorder on its advisory board and board of directors. Add To Favorites

Head Start
Head Start serves the child development needs of preschool children (birth through age 5) and their low-income families. Add To Favorites

Dedicated to supporting people who experience disabilities and exhibit difficult behaviors. The practice is based on the simple idea that difficult behaviors result from unmet needs. Add To Favorites

Independent Living Institute
A policy development center specializing in consumer-driven policies for disabled peoples' self-determination, self-respect and dignity. Add To Favorites

Independent Living Research Utilization (ILRU)
Information, training, research, and technical assistance in independent living. Add To Favorites

Independent Living USA
A news, information and advocacy site for disabled persons seeking to live independently. Based in NY City, the site includes a Directory of Independent Living Centers, and contact a Center in that State. The Directory has ILCs listed by States and countries. Add To Favorites

Indiana Institute on Disability and Community, Indiana University
The mission of the Indiana Institute on Disability and Community is to work with communities to welcome, value, and support the meaningful participation of people of all ages and abilities through research, education, and service. Add To Favorites

Institute on Community Integration
Conducts research, training, technical assistance, and dissemination to improve the lives of persons with disabilities and their families. Add To Favorites

International Dyslexia Association (IDA)
IDA is a nonprofit organization dedicated to helping individuals with dyslexia, their families, and the communities that support them. Add To Favorites

International Rett Syndrome Association
A partnership of parents and professionals united in purpose to bring greater understanding of Rett syndrome. Membership is represented by all 50 states and 65 foreign countries. Members include parents, relatives, physicians, therapists, researchers and friends, all interested in providing a better future for girls with Rett syndrome. Add To Favorites

Internet Special Education Resources (ISER)
A nationwide directory of professionals who serve the learning disabilities and special education communities. Helps parents and caregivers find local special education professionals to help with learning disabilities and attention deficit disorder assessment, therapy, advocacy, and other special needs. Add To Favorites

Job Accommodation Network (JAN)
Works to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, entrepreneurship, and related subjects. Add To Favorites

Job Accommodation Network (JAN)
JAN is a consulting service that provides information about job accommodations and the employability of people with disabilities. Add To Favorites

Kansas Intellectual and Developmental Disabilities Research Center
Pioneers advances in our understanding of the many biological and behavioral processes underlying human development and the conditions that occur when these processes go awry leading to intellectual and developmental disabilities. Add To Favorites

Learning Disabilities Association of America
Provides support to people with learning disabilities, their parents, teachers and other professionals. At the national, state and local levels, LDA provides cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources. Add To Favorites

Learning Disabilities Online
A support site for parents, teachers and other professionals dealing with the challenges of learning disabilities that include Dyslexia, Dyscalculia, Dysgraphia and those affecting Auditory and Visual Processing. Add To Favorites

Little City Foundation
Helps children and adults with intellectual and developmental disabilities and other, emotional and/or behavioral challenges live meaningful and happy lives with dignity and respect. Add To Favorites

Museum of disABILITY History
Dedicated to the collection, preservation and display of artifacts pertaining to the history of people with disabilities. Located in Buffalo, New York, and on the World Wide Web, the museum offers educational exhibits and activities that expand community awareness. The Museum of disability History is a project of People Inc. Add To Favorites

National Association for the Education of Young Children (NAEYC)
NAEYC is dedicated to improving the well-being of all young children, with particular focus on the quality of educational and developmental services for all children birth through age 8. Add To Favorites

National Association of Councils on Developmental Disabilities
Provides support and assistance to member Councils in order to promote a consumer and family centered system of services and supports for individuals with developmental disabilities. Add To Favorites

National Association of Private Special Education Centers (NAPSEC)
A nonprofit association whose mission is to represent private special education centers and their leaders. Add To Favorites

National Ataxia Foundation
Dedicated to improving the lives of persons affected by ataxia through support, education, and research, the Foundation supports research in dominant ataxia (including SCA’s), recessive ataxia (including Friedreich’s), and sporadic ataxia. In addition, the Foundation has developed an extensive library of NAF brochures, fact sheets, books, and other educational material relating to ataxia Add To Favorites

National Center for Learning Disabilities
Increases public awareness and understanding of learning disabilities, conducts educational programs and services that promote research-based knowledge, and provides national leadership in shaping public policy. NCLD provides solutions that help people with LD participate fully in society. Add To Favorites

National Center on Birth Defects and Developmental Disabilities
A web site of the Center for Disease Control (CDC) that provides information on research relevant to those dealing with developmental disabilities. Add To Favorites

National Council on Disability
An independent federal agency making recommendations to the President and Congress on issues affecting Americans with disabilities. NCD is composed of 15 members appointed by the President and confirmed by the U.S. Senate. Add To Favorites

National Dissemination Center for Children with Disabilities (NICHCY)
Provides information on disabilities in children and youth, programs and services for infants, children, and youth with disabilities, IDEA, special education law, No Child Left Behind, general education law and research-based information on effective practices for children with disabilities. Add To Favorites

National Down Syndrome Society
Works to benefit people with Down syndrome and their families through national leadership in education, research and advocacy. Add To Favorites

National Early Childhood Technical Assistance Center (NECTAC)
The NECTAC mission is to strengthen service systems to ensure that children with disabilities (birth through five) and their families receive and benefit from high quality, culturally appropriate, and family-centered supports and services. Add To Favorites

National Institute of Child Health & Human Development (NICHD)
NICHD seeks to assure that every individual is born healthy, is born wanted, and has the opportunity to fulfill his or her potential. Add To Favorites

National Institute of Mental Health (NIMH) Autism Spectrum Disorders (ASD) Research
NIMH provides information that summarizes the current research on the causes, diagnosis, prevention and treatment of autism spectrum disorders. Add To Favorites

National Institute on Deafness and Other Communication Disorders
Conducts and supports biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. The Institute also conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function. Add To Favorites

National Organization for Rare Disorders (NORD)
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research and service. Add To Favorites

National Organization on Disability (NOD)
Promotes full and equal participation of America’s 54 million men, women, and children with disabilities in all aspects of life. Add To Favorites

National Rehabilitation Information Center (NARIC)
NARIC is a library and information center focusing on disability and rehabilitation research. Add To Favorites

Neurodevelopmental Disorders Research Center, University of North Carolina
The mission of the UNC NDRC is to support and promote multidisciplinary research and research training on the origination and development and treatment/prevention of neurodevelopmental disorders. Add To Favorites

Organization for Autism Research (OAR)
Led by parents, grandparents and relatives of children and adults with autism, OAR uses applied science to answer questions for the community. OAR's Web site offers free online programs that can be downloaded for parents and professionals. Add To Favorites

PACER Center
Expands opportunities and enhances the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents. Provides assistance to individual families, workshops, materials for parents and professionals, and leadership in securing a free and appropriate public education for all children Add To Favorites

Parent Training and Information Centers and Community Parent Resource Centers
An online directory to regional Parent Centers that serve families of children and young adults from birth to age 22 with all disabilities: physical, cognitive, emotional, and learning. Add To Favorites

Parents Helping Parents
Helps children with special needs receive the resources, love, hope, respect, health care, education, and other services they need to reach their full potential by providing them with strong families, dedicated professionals, and responsive systems to serve them. Add To Favorites

Pathways Awareness Foundation
A national non-profit organization dedicated to raising awareness about the benefit of early detection and early therapy for children with physical movement differences. Add To Favorites

Peak Parent Center
Works to provide training, information and technical assistance to equip families of children birth through twenty-six including all disability conditions with strategies to advocate successfully for their children. Add To Favorites

Pediatric Development and Behavior
An independent web site created to promote better care and outcomes for children and families affected by developmental, learning, and behavioral problems by providing access to clinically relevant information and educational material for physicians, fellows, resident physicians, and students. The site may also be of interest to psychologists, nurses, nurse practitioners, social workers, therapists, educators, and parents. Add To Favorites

Prader-Willi Syndrome Association (PWSA)
PWSA is an organization of families and professional working together to promote and fund research, provide education, and offer support to enhance the quality of life of those impacted by Prader-Willi syndrome. Add To Favorites

Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD)
A web site designed to provide information on the latest research, model programs, and policy issues pertaining to the population of aging people with developmental disabilities. Add To Favorites

Sibling Support Project
A national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. Add To Favorites

Social Security Administration
Official website of the US Social Security Administration. Add To Favorites

    Disability Programs
    Explanation or disability benefits and policy for Social Security Disability Insurance and Supplemental Security Income. Add To Favorites

    Ticket to Work
    The Ticket to Work Program offers SSA disability beneficiaries greater choice in obtaining the services they need to help them go to work and achieve their employment goals. Add To Favorites

Spina Bifida Association of America
Promotes the prevention of spina bifida and enhances the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community. It serves as the national representative of almost 60 chapters. Add To Favorites

TASH is an international association of people with disabilities, their family members, and other advocates working together to create change and build capacity so that all people, no matter their perceived level of disability, are included in all aspects of society. Add To Favorites

Therapeutic Resources
Provides easy to use and effective educational products to assist in the development of life skills and personal development. These resources help to asisst the people involved in the therapeutic care of others. Add To Favorites

Through the Looking Glass
TLG is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community-based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. Add To Favorites

Trace Research & Development Center
Part of the College of Engineering, University of Wisconsin-Madison. Founded in 1971, Trace has been a pioneer in the field of technology and disability. Its mission is to prevent the barriers and capitalize on the opportunities presented by current and emerging information and telecommunication technologies, in order to create a world that is as accessible and usable as possible for as many people as possible. Add To Favorites

U.S. Department of Health and Human Services (HHS) Office on Disability
Oversees the implementation and coordination of disability programs, policies and special initiatives pertaining to the over 54 million persons with disabilities in the United States. Add To Favorites

U.S. Department of Labor Office of Disability Employment Policy (ODEP)
ODEP provides national leadership by developing and influencing disability-related employment policy as well as practice affecting the employment of people with disabilities. Add To Favorites

The mission of the Center is to elucidate the molecular, cellular and behavioral mechanisms underlying the pathogenesis of developmental dysfunctions causing intellectual and developmental disabilities and to translate this fundamental knowledge into novel diagnostic, preventive and therapeutic approaches which can be ultimately applied in clinical care. Add To Favorites

University of Montana Rural Institute: Transitions Project
Works toexpand the model of transition planning created through Project WISER to include self-employment as a career exploration strategy and a post-school employment option for students with ongoing support needs, and to increase the accessing of Workforce Investment resources as part of transition planning. Linkages will be developed and piloted in six Montana communities. Add To Favorites

Vanderbilt Kennedy Center for Research on Human Development
The mission of the Vanderbilt Kennedy Center for Research on Human Development is to improve the quality of life of persons with disorders of thinking, learning, perception, communication, mood and emotion caused by disruption of typical development. Add To Favorites

VSA Arts
An international nonprofit organization that seeks to create a society where all people with disbilities learn through, participate in and enjoy the arts. Add To Favorites

Waisman Center, University of Wisconsin
The Waisman Center’s mission is to advance knowledge about human development, developmental disabilities, and neurodegenerative diseases. Add To Favorites

World Institute on Disability
Dedicated to promoting independence and societal inclusion of people with disabilities. Includes publications, programs and events. Add To Favorites

The Wrightslaw mission is to provide parents, advocates, educators, and attorneys with accurate, up-to-date information about special education law and advocacy so they can be effective catalysts. Add To Favorites

Yale Developmental Disabilities Clinic
Offers comprehensive, multidisciplinary evaluations for children with social disabilities, usually focusing on the issues of diagnosis and intervention. Add To Favorites

Zero to Three
Offers a comprehensive interactive resource for parents and early childhood education professional on healthy development of children ages zero to three. Add To Favorites